Now you’re not hair any more

OK, the title is an awful pun, guilty as charged. And as you will find out shortly, I might be exaggerating the issue some what, but hey, if Prince Andrew can remember (supposedly) a Pizza Express in Woking that he was in 18 years ago, when all the evidence suggests he was somewhere else, anyway…

Currently, given a lot of it has been shorn off, and what is left is generally hidden under a wig, shampooing, and washing my hair once a week is fine at present. But yes, I’ve looked each week for hair loss, and first 2 weeks, hardly any more than the few dead ends that might fall out, but then today… Yes, I noticed it, definitely. To be fair, as stated, it is literally just around the area of treatment, but that fell out heavily today, but such is life.

Yes, at least in that area now, the wig will fit better, so swings and roundabouts. But there are mornings when I’m getting ready to go to treatment where it stubbornly refuses to fit over the rest of the hair, so now, do I just carry on as before, or do I get the lot taken off? The latter would solve the wig issue, I think its fair to say, but do I really want to remove the lot? I know, the whole robot look I love is bald (a la Metropolis) but its still a big thing to do. Mind, if someone wants to provide me with the rest of a Metropolis robot bodysuit in a nice, or suitable material, deal, hair all gone!

Well, I dont know if its still ‘Forever Autumn’ as it felt more like Winter when I had to go out the back earlier today, but anyway…

Even more of a medicine head

Well, recently I’ve been taking 7 pills for various issues for a while, but from tomorrow onwards for a while, that number is going up, as I have to take the chemotherapy pill daily, and a few others as well, to combat any possible nausea issues, as well as antibiotics to keep me healthy, as everything I will need to take for next 6 weeks will lower my ability to resist various illnesses and stuff, because it will all be affected by the radiotherapy, and chemo stuff.

Yes, why they cant just give me the full robot makeover, I know…Oh, I wish! I dont know how much more hair I can lose, given I got most of it chopped off so the wigs work better, but maybe my hair will see that as a challenge, but other than that…

It has been suggested that I should do at least 1 session (I suspect some think I should do all 30) wearing the silver Lycra bodysuit, and the silver wig, and I suspect it will happen on a day when I have time to plan it out, and no other appointments, which means you can accept its not going to happen before Thursday this week, as see above, due to 2 appointments, and a very early start. Sadly the chances of getting a full face metal mask to match is less than slim.

Hopefully, if nothing else, I can come up with something apt blog wise for Halloween, though if I dont, dont sue me, as its a lunchtime radiotherapy session that day, so how things will work out time wise, I really have no idea. I have no plans to dress up anyway, though I now have my Christmas Day outfit on the settee besides me, as it arrived earlier today, thanks to Amazon Prime, the last day I will have that service available to me. Beyond Eric’s birthday (4 weeks today) present, I dont know of anything I need to buy soon, as anything for Christmas presents (definitely online buying this year) can wait until after all the treatments end on 6th December, and I start my 4 week recovery period. Not that many to get thankfully, but the few I do need to get, well…

Oh Father Christmas, a full body robot suit, ideally quite solid in design, oh please, lol. No, wont happen, but a woman can dream!

Right, video time. Unless you are about my age, or older, you arent likely to remember this, but anyway. Yes, its mimed, as you cant hear all the clapping because its all on a tape, but never mind…

Mustn’t stop believing

I have jokingly said to my followers on Social Media that by the end of the next 6 weeks, they might all be sick of this song, or maybe not for various reasons. Hopefully I wont need it too often, and even if I do, hopefully I find enough different versions of it not to drive everyone crazy anyway. Sadly, or luckily for you, I doubt very much I can find any version of me singing this, either at Dodgers Stadium, or other baseball stadiums (Kansas City, and San Francisco for sure) for which you should be grateful, as I’m not really that good a singer, but anyway…

Yes, I love this song, and I suspect I might need it over the next 6 weeks if things get to me with all the radiotherapy and stuff. But equally, if they provide me with a metal face mask instead of the plastic one, and I’m a ‘naughty’ girl, and wear a silver Lycra bodysuit under the clothing for a session or more, I might actually love the whole experience, but we will see?

The one thing that is for sure is the fact I need to learn to listen to the needs of my body, even if logic says otherwise. Like today, I didnt think I should be that worn out, but it seems I was, as 2 hours of sleep this afternoon did wonders for me, even if neither yesterday, or this morning had seemed that hard a period, but fine, my body was right, or I wouldnt be typing this now, lol.

Will there be blogs tomorrow? No idea, I’ll see how the mood takes me, but probably, as I’m not sure how many will appear over the next 6 weeks, as even allowing for weekends, this issue of weariness is going to play into things, clearly. No, I wont be dressing for Halloween, but as I’ve just ordered something to wear at Christmas, which is due tomorrow, on my last day of Amazon Prime free trial period (not paying for more), looks like I will be dressing up then, though I’m sure hair will be a wig, but as to colour, and style, we will have to wait and see!

In truth, I have no idea how the next 6 weeks will affect me, just got to get through it, and find out, I guess? I do know I’ll have seen more than enough of Leeds by then, for sure, lol. But equally I know I’m very lucky. Not that many decades ago, this sort of cancer would have been a death sentence, but now, far less so, maybe not at all. I’d love to think that if I needed it, I might be able to get the Metropolis treatment, but only in my dreams, I’m sure.

Right, the video. Yes, tonight the original group version live, but maybe in the future…?

Part of the robot union

(To say, for those who do both blogs, this is pretty similar to the other one, though not identical. To those who dont, just read on)

Given that I’m going to lose some/most/all of my hair soon, when the radiotherapy begins, I decided to beat the process, by getting most of my hair removed now, and going over to wigs. Yes, I couldnt resist one cheap silver bob wig, and match it up to a silver Lycra bodysuit I have, which is now about 15 years old for a robot moment, or six. Sadly the zip hasnt lasted the years, so I needed a top to keep warm, especially for a picture taken outside today. This one in fact!

robot me

Yes, its a cheap wig, so not the perfect look, but it works pretty well, anyway. To be honest, the suit is very comfortable, and supporting, so if anyone wants to sponsor me for some more (6 weeks of treatment, plus travel time isnt going to leave much laundry time, so up to 30), email me at stephmajor8@hotmail.com for details of how to do so. I need to get in UK, as radiotherapy starts on 28th, and machine isnt comfortable on a damaged spine, but anyway…

Yes, shot in our front area, though thats not our house behind me.

Next week marks the last week for 6 that I will have less than 5 days travelling to Leeds, though going there twice, which at 15-20 miles each way means I wont want to travel to Leeds for a while once this is all over, lol. Dressing up as part of the robot union, a whole different matter.

Which leads to the video

 

 

 

Crackling Harlean?

But no, before anyone thinks this is going to be about my health matters, you’re wrong!

One of the things I’m now in a position to catch up on, and get inspired by, is the Blackpool film festival next year, which is a bit later next year, not in March, but in May, weekend starting on the 22nd to be exact, and seemingly going on to the 25th, given its a Bank Holiday weekend, so that will be fun.

One of the suggested themes for the weekend is the old dance based musicals, though I think its safe to say that as I will then be 62, I wont be wearing anything quite as revealing as anything young Clara Johnson, and the other dancers did, lol. Something fun, and a dancer type outfit, but crazily revealing, not without very large amounts of personal sponsorship, lol.

However, one of the other considerations involves science fiction films, and one film got included in the discussion, Metropolis. Just think about, and even ignoring my less than subtle robot kink, what could be better for a recovering cancer patient than wearing a full robot bodysuit outfit, able to sit down for recovery periods in the seat that was designed for the Metropolis robot to sit in? And lets face it, if a robot feels the need to walk slowly, well again, its what she’s meant to do? And besides, if me hair, or anything else is in less than perfect condition, even by then, who is going to know? Oh, and yes, fine, I’d love every moment of wearing it, anyway.

Of course, if I needed an absolute incentive to make sure I was fit enough to work at the Festival in May, that would definitely be it!

Mind, I might get some early practice of living as a robot over this weekend anyway. The hair hasnt been cut since March, just before the health issues all started, but all (or pretty much all) is coming off tomorrow morning. Oh, should I mention that at the moment, the only wig that has turned up is the silver one? The 2 redhead ones (a bob and a just longer than shoulder one), the email says will be delivered by Monday, but in the interim, its either the almost bald (or actually bald) robot look, or a silver wig, so well…? I have some old (and I mean as in over 10 years old) silver Lycra type suits that might also get used at weekend, assuming I can still get into them of course? No, as far as I know, I’m not going out at the weekend, and Lycra isnt going to work for outdoor wear at my age, but indoors…

As far as I know, after tomorrow the next time I need to venture out is a week today, for the meet the team get together in Leeds hospital. It was also going to be meet the blonde wig day, but that is now on 29th, as its a day that suits the team providing it, after a phone call this morning. Oh, we got there on call 3, they’d been given the wrong Christian name, so twice said Julie, but she eventually worked out it was me, rang me back, and then… Fine, I’ll settle for one of the redhead wigs on the 24th, lol, unless someone wants to dare me, with a sponsorship payment?

No, despite the subject matter, its not a certain Queen video. Yes, there is a big clue in the blog title though.

 

 

So robot?

OK, lets start off with the amusing moment today, the first of my wig ‘collection’ arrived today, the cheapest I’m buying (though NHS backed one will be free, as on benefits), the silver bob wig. In truth, its what you would expect for £7, or there about, it will do fine as a fun wig, but its not going to win any prizes for quality, thats for sure. I was actually going to put it on today, and see if Eric (the landlord) even noticed, but because my hair hasnt been cut for just over 7 months, its now too long for a bob length wig, and too full for a wig to sit over it, so never mind… But yes, I will have to wait for the better quality redhead wigs to arrive in next few days, before getting shorn of hair, for sure. The last, the blonde bob wig, care of NHS/McMillan Cancer service, not until the 24th, when next on a definite visit to Leeds hospital before radiotherapy begins, as meeting team treating me that day. In theory I have a Occupational Therapy session before then, but as I dont yet have the rearranged date for that, taken the safe option on date.

I could go to my usual hairdresser round the corner, and get my hair done by her, but in truth, the weather around here recently has been wetter than what Noah faced aboard the Ark, and also, despite my mobility improving slightly lately, its not perfect, and is about 400-600 yards each way, so probably beyond me at the moment. 100-200 yards to the post box, yes, can now manage, but hairdresser far…?

The thing is, I was thinking that I was only likely to do the full robot look indoors with the wig, in which case a new (all my current ones are old, and in less than perfect condition) shiny Zentai/Lycra suit would have been fine, as figure hugging wouldnt matter all that much, but then someone suggested I should go outside, a la robot, and fine, that sort of challenge to an actress like me, oh please…how can I resist?

Snag is, at 61, with a bit of middle aged tummy, going out, even to the front gate, let alone further, in a figure hugging outfit, well…? Oh fine, I joke about wearing a latex catsuit, and would in private, given the chance, but winter is coming, and that would be in public, so… Dont get me wrong, I’ll do it, in the right robot suit, but something like that needs something not figure hugging, and at this time of year, probably with some lining too, all of which is going to be far more complex to get, to put it mildly. But if I can find, or be provided with such an item, oh yes, would be great fun to do.

I have to admit it, my friend Angie posted a great picture of a 6 ft tall beaver suit this morning, full body enclosing, which looked great fun. Now, if that had been a similar suit, in robot look, I might have been tempted, even at a price I really, really cant afford, but anyway… Still, if anyone knows of such a robot suit, in the UK, then please, an old lady, even if just to wear it once, well…?

Right, video time. I actually have a Police (pop group) story I can tell, that might amuse some. Back around 1979 (judging by singles discography) some friends of mine at the time were asked to be the band for one of those singers (cant remember who) who could sing, but had no touring band to do a few little concerts, which they did. The thing is, for reasons best known to the promoters, the last concert was an outdoor one in Inverness, so they were looking for a band to play a short set before the star turn, and my friends were asked if they knew anyone who might be interested in doing so. Well, they’d worked with this group who had released 2 or 3 singles previously, with little to no chart success (highest reached 42), called, yes, you’ve guessed it, Police.

Concert was done, Roxanne was re-released, got to number 12 in the charts second time round, and the rest was history! This isnt Roxanne, but one of those other early singles, with a one word tweak for the blog title, lol

 

 

I can imagine my destinations

To be honest, its worked out for the best that I had the taxi drive home from hell yesterday afternoon, which meant that all I wanted to do yesterday evening was have an evening watching baseball (though sadly the Dodgers lost, after I’d gone to bed), and not writing up blogs, as I can now cheat, and cover 2 days of news in one blog.

Oh, the taxi driver, no wonder the NHS funds are needed, because he cheated the route home so much, that fare must have been nearly double what it needed to be, but anyway. I was going to report him to Leeds City Council over it, but unsurprisingly, given everything now, I cant remember his licence number, so sadly he will now get away with it, but anyway…

Yesterday afternoon was the day the plan got sorted out, and signed off. I also delighted myself by finding out my walking distance without hurting myself, is getting better, though we are still talking in terms of about 100 yards, than London Marathon stuff, lol. Still, Occupational Therapy in Leeds on Friday morning will hopefully see a bit more improvement too. Other than that, a bit of Speech Therapy help to be arranged, not because words arent right, though still faint, more down to the fact that I have a dribble issue at moment, though even that seems far less today, good news. Other thing is a Social Help contact, to sort out things like Disabled Bus pass, postal vote stuff,and the  letter I need so that work can take the last step for medical retirement process. But as that couldnt be done before I agreed plan yesterday afternoon…

Plan is to start Radiotherapy in about 3 weeks time, for a period of 6 weeks, 5 days a week. Some might be shrewd enough to notice, that the exact start date is going to mean it might be over just before Christmas/New Year period, or just after, no guarantees either way, but holiday period, no treatments anyway, quite rightly. I will be doing Chemo tablets too during this period, and then do a few more of those in the 6 month period that follows too, but only a handful or so. I’ve been told that I need to allow about 4 weeks after that to get over the treatment, and then about a couple more weeks or so before contemplating flying or anything, all fine by me. Which in my eyes, gives me a probable date to do much at all as towards the end of February in likelihood. No promises on date, but it looks a fair date to me, with an anniversary on the horizon, March 15th, the first big seizure!

Just after the time, the lovely people at the guest house, sent me an email re the 3 nights that we never stayed there, saying the credit would stand for future use when I needed them. To be fair, I doubt they imagined it would take a year to get to that point, but it will. So, being the polite, and fair lady I am, I just asked if that date would still be fine to use it. Took about 20 minutes to get an email back confirming it would, so…Kudos to Pelham Lodge Guest House, Blackpool! No, Film Festival is later next year, but there is still the matter of the tram journey I never completed…

OK, end piece, got the call this morning, going to Leeds on Thursday afternoon to get measured for my plastic mask that will be used to direct the treatment to the needed area. Will also have CT, and blood test done on same trip, to give them the base settings they need pre treatment. As a few friends would know, I’d prefer a full face Iron Mask, rather than a positioned plastic one, but hey, its a start! Maybe the latter can follow post treatment, lol?

Right, to video now. One of my favourite groups of all time, one of their very early hits, live